{"id":8617,"date":"2024-10-27T18:33:33","date_gmt":"2024-10-27T18:33:33","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=8617"},"modified":"2024-10-27T18:33:33","modified_gmt":"2024-10-27T18:33:33","slug":"individual-with-lgmd-nancy","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2024\/10\/27\/individual-with-lgmd-nancy\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a \u5357\u5e0c"},"content":{"rendered":"

\"<\/p>\n

\u540d\u79f0<\/strong>: \u5357\u5e0c<\/p>\n

\u5e74\u9f84<\/strong>: 76<\/p>\n

\u56fd\u5bb6<\/strong>:\u7f8e\u56fd<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>:LGMD 2C\/R5 \u4e0e\u4f3d\u9a6c\u8089\u7c98\u86cb\u767d\u76f8\u5173<\/p>\n

 <\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>?<\/p>\n

\u6211 25 \u5c81\u65f6\u88ab\u8bef\u8bca\u4e3a\u591a\u53d1\u6027\u808c\u708e\uff0c\u63a5\u53d7\u4e86 27 \u5e74\u7684\u6cfc\u5c3c\u677e\u6cbb\u7597\u3002 \u6211\u7b2c\u4e00\u6b21\u5f97\u5230\u51c6\u786e\u8bca\u65ad\u662f\u5728 50 \u591a\u5c81\u7684\u65f6\u5019\u3002<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f <\/strong><\/p>\n

\u6211\u8fd8\u8bb0\u5f97\u5728\u5e7c\u513f\u56ed\u7684\u65f6\u5019\uff0c\u6211\u8dd1\u8fc7\u4e00\u7247\u7530\u91ce\uff0c\u7ed3\u679c\u662f\u6700\u540e\u4e00\u540d\u3002\u4f46\u5728\u5927\u5b66\u642c\u8fdb\u4e00\u680b\u4e24\u5c42\u697c\u7684\u623f\u5b50\u4e4b\u524d\uff0c\u6211\u771f\u7684\u6ca1\u6709\u9047\u5230\u8fc7\u4ec0\u4e48\u56f0\u96be\u3002\u722c\u697c\u68af\u548c\u4ece\u5730\u677f\u4e0a\u7ad9\u8d77\u6765\u53d8\u5f97\u975e\u5e38\u56f0\u96be\u3002<\/p>\n

\u60a8\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD \u5417\uff1f\u00a0 <\/strong><\/p>\n

\u4e0d\uff0c\u6211\u6ca1\u6709\u3002<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

\u6211\u7684\u95ee\u9898\u8fdb\u5c55\u975e\u5e38\u7f13\u6162\u3002 \u5728\u6821\u671f\u95f4\uff0c\u751a\u81f3\u5728\u5927\u5b66\u671f\u95f4\uff0c\u6211\u90fd\u5f88\u5c11\u9047\u5230\u56f0\u96be\u3002 \u5f53\u6211\u5f00\u59cb\u6211\u7684\u6559\u5b66\u751f\u6daf\u65f6\uff0c\u6211\u4ece\u5750\u59ff\u7ad9\u8d77\u6765\u65f6\u9047\u5230\u4e86\u56f0\u96be\uff0c\u7136\u540e\u5728\u4e0a\u8def\u8fb9\u65f6\u4e5f\u9047\u5230\u4e86\u56f0\u96be\u3002 \u62ac\u817f\u5f00\u8f66\u53d8\u5f97\u5f88\u56f0\u96be\uff0c\u75b2\u52b3\u4e5f\u6210\u4e86\u95ee\u9898\uff0c\u4f46\u6211\u8fd8\u662f\u7ee7\u7eed\u6559\u4e66\u3002 \u4e00\u76f4\u4ee5\u6765\uff0c\u6211\u90fd\u5f97\u5230\u4e86\u5173\u7231\u6211\u7684\u4e08\u592b\u3001\u5b69\u5b50\u3001\u5bb6\u4eba\u3001\u670b\u53cb\u548c\u540c\u4e8b\u7684\u652f\u6301\uff0c\u8fd9\u8ba9\u6211\u80fd\u591f\u63a5\u53d7\u81ea\u5df1\u7684\u72b6\u51b5\u3002 \u6211\u5148\u662f\u4f7f\u7528\u62d0\u6756\u3001\u52a9\u884c\u5668\uff0c\u7136\u540e\u662f\u7535\u52a8\u8f6e\u6905\u3002 \u6311\u6218\u662f\u5b58\u5728\u7684\uff0c\u4f46\u6211\u4ece\u672a\u611f\u5230\u88ab\u5b83\u4eec\u538b\u5012\u3002\u6b64\u5916\uff0c\u7531\u4e8e LGMD \u8fdb\u5c55\u7f13\u6162\uff0c\u6211\u53ef\u4ee5\u9002\u5e94\u65b0\u7684\u6311\u6218\u3002 \u73b0\u5728\uff0c\u6211\u80fd\u53bb\u7684\u5730\u65b9\u6709\u9650\u3002 \u65c5\u884c\u603b\u662f\u4e00\u79cd\u5192\u9669\u3002 \u6211\u5750\u8fc7\u51e0\u6b21\u8d27\u68af\uff0c\u88ab\u56f0\u8fc7\u51e0\u6b21\u536b\u751f\u95f4\uff0c\u4f46\u81f3\u5c11\u73b0\u5728\u6211\u53ef\u4ee5\u4e00\u7b11\u7f6e\u4e4b\u4e86\u3002<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f\u00a0 <\/strong><\/p>\n

\u6211\u60f3\u8bf4\u7684\u662f\u4fdd\u6301\u826f\u597d\u7684\u5fc3\u6001\u3002\u5728\u9002\u5e94\u751f\u6d3b\u53d8\u5316\u7684\u540c\u65f6\uff0c\u6211\u8fd8\u7ed3\u4e86\u5a5a\uff0c\u751f\u4e86\u4e00\u5bf9\u7537\/\u5973\u53cc\u80de\u80ce\uff0c\u8fc7\u4e0a\u4e86\u76f8\u5f53\u6b63\u5e38\u7684\u751f\u6d3b\u3002<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f\u00a0 <\/strong><\/p>\n

\u5b83\u6559\u4f1a\u4e86\u6211\u8981\u79ef\u6781\u4e50\u89c2\uff0c\u575a\u4fe1\u4e8b\u60c5\u4f1a\u6709\u6700\u597d\u7684\u7ed3\u679c\u3002 \u751f\u547d\u4e2d\u62e5\u6709\u7231\u4f60\u548c\u652f\u6301\u4f60\u7684\u4eba\u603b\u662f\u6709\u5e2e\u52a9\u7684\u3002<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>?<\/p>\n

\u662f\u7684\uff0c\u8fd9\u5f88\u96be\u9a7e\u9a6d\uff0c\u6709\u4e9b\u65e5\u5b50\u80af\u5b9a\u6bd4\u5176\u4ed6\u65e5\u5b50\u66f4\u8270\u96be\uff0c\u4f46\u5982\u679c\u4f60\u8eab\u8fb9\u6709\u4eba\u4fdd\u6301\u79ef\u6781\u7684\u6001\u5ea6\u5e76\u9f13\u52b1\u4f60\uff0c\u90a3\u4e48\u5b8c\u6210\u7684\u4e8b\u60c5\u4f1a\u6bd4\u4f60\u60f3\u8c61\u7684\u8981\u591a\u3002<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

\u6211\u60f3\u5e2e\u52a9\u6211\u7684\u4e08\u592b\uff0c\u4ee5\u56de\u62a5\u4ed6\u591a\u5e74\u6765\u5bf9\u6211\u7684\u7167\u987e\u3002 \u6211\u5e0c\u671b\u80fd\u7ed9\u5bb6\u4eba\u548c\u670b\u53cb\u4e00\u4e2a\u771f\u6b63\u7684\u62e5\u62b1\u3002 \u4e3a\u4e86\u597d\u73a9\uff0c\u6211\u60f3\u8df3\u821e\u3002<\/p>","protected":false},"excerpt":{"rendered":"

Name:\u00a0 Nancy Age: 76 Country: USA LGMD Sub-Type: LGMD 2C\/R5 […]<\/p>","protected":false},"author":3,"featured_media":8618,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[125],"class_list":["post-8617","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Nancy - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2024\/10\/27\/individual-with-lgmd-nancy\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Nancy - 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