몇 살에 진단을 받았나요?
9

가장 큰 성과는 무엇인가요?
My greatest accomplishment is continuing to live an active and meaningful life despite LGMD. I’m building strong relationships, adapting to challenges, and maintaining my sense of purpose and humor through it all.

첫 증상은 어떤 것이었나요?
My body was always hurting

LGMD가 지금의 자신을 만드는 데 어떤 영향을 미쳤나요?
LGMD has made me more patient, resilient, and appreciative of the small victories in life. It’s taught me to problem solve daily, advocate for myself, and value the people who truly show up and support me.

다른 가족 중에 LGMD를 앓고 있는 사람이 있나요?
아니요

LGMD에 대해 세상에 어떤 점을 알리고 싶으신가요?
I want the world to understand that LGMD is often invisible at first, but it deeply impacts strength, mobility, and energy. People with LGMD are still capable, driven, and full of life. They just navigate the world differently and deserve accessibility, respect, and understanding.

LGMD와 함께 생활하면서 가장 어려운 점은 무엇이라고 생각하시나요?
The greatest challenges are the gradual loss of strength and independence, and adapting to changes in mobility over time. Everyday tasks that used to be simple now require planning, support, or adaptive equipment. There’s also the emotional side of learning to adjust while still trying to live fully and not let the condition define everything.

내일 LGMD를 '치료'할 수 있다면 가장 먼저 하고 싶은 일은 무엇인가요?
I would want to experience freedom of movement again. Walk, travel more easily, and do everyday things without needing to think about limitations or fatigue. I would pick my son up and carry him. Be a “normal” dad.