Name: Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community
Start: 2025-04-30T14:30:00-04:00
End: 2025-04-30T15:30:00-04:00
Location: Virtual

LGMD 宣传日工具包

Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. Our Awareness Day Toolkit is designed to empower and engage our community in advocacy like never before.

LGMD 宣传日工具包

关于 LGMD 宣传日

LGMD 宣传日是一年一度的活动，旨在引起人们对这种罕见疾病的关注。

了解有关 LGMD 宣传日的更多信息

这个事件已通过。

Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

April 30 @ 2:30 pm - 3:30 pm

活动导航

Limb-Girdle Muscular Dystrophy (LGMD) Masterclass
Mouthpiece Ventilation in Neuromuscular Conditions

会面
Girdie

LGMD 宣传日工具包

关于 LGMD 宣传日

倡议

资源

Become a Sponsor

知识库

基因检测

关于 LGMD

导航 LGMD

社区网络

LGMD 宣传捆绑计划 (LAB)

聚光灯

LGMD 患者

LGMD 研究人员

LGMD 诊所工作人员

LGMD 组织

Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

April 30 @ 2:30 pm - 3:30 pm

活动导航

注册电子邮件更新！

会面 Girdie

LGMD 宣传日工具包

关于 LGMD 宣传日

倡议

资源

Become a Sponsor

知识库

基因检测

关于 LGMD

导航 LGMD

社区网络

LGMD 宣传捆绑计划 (LAB)

聚光灯

LGMD 患者

LGMD 研究人员

LGMD 诊所工作人员

LGMD 组织

Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

April 30 @ 2:30 pm - 3:30 pm

分享故事，选择平台！

活动 导航

注册电子邮件更新！

会面
Girdie

活动导航