Name: Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community
Start: 2025-04-30T14:30:00-04:00
End: 2025-04-30T15:30:00-04:00
Location: Virtual

LGMD Awareness Day Toolkit

Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. Our Awareness Day Toolkit is designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit

Become a Sponsor

Your sponsorship will propel us towards a future where every individual with LGMD has access to the care, support, and treatments they deserve.

Download Sponsorship Form

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Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

April 30 @ 2:30 pm - 3:30 pm

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Limb-Girdle Muscular Dystrophy (LGMD) Masterclass
Mouthpiece Ventilation in Neuromuscular Conditions

Meet
Girdie

LGMD Awareness Day Toolkit

About LGMD Awareness Day

Initiatives

Resources

Become a Sponsor

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

April 30 @ 2:30 pm - 3:30 pm

Event Navigation

Sign up for email updates!

Meet Girdie

LGMD Awareness Day Toolkit

About LGMD Awareness Day

Initiatives

Resources

Become a Sponsor

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

April 30 @ 2:30 pm - 3:30 pm

Share This Story, Choose Your Platform!

Event Navigation

Sign up for email updates!

Meet
Girdie