Examples of How to Promote Awareness

As an interested participant, you probably have some ideas about how to promote LGMD Awareness in your area. But, just in case you don’t here are some examples of how you can help raise awareness.

As an Ambassador, you can help raise awareness of LGMD by:

  • Posting the LGMD Awareness Day logo on your website and in your publications?

  • Following our posts on Facebook and then liking & sharing the posts with your friends.

  • Volunteering to be featured an upcoming “LGMD Spotlight Interview“

  • Changing your Facebook profile photo to our “I Support” logo

  • Changing your Facebook cover photo to our promotional logo

  • Linking your website to www.LGMD-info.org

  • Writing letters to your local policy and decision makers to share information and raise awareness of LGMD.

  • Interacting with our social media, and use the available resource tools to promote LGMD Awareness Day

  • Interacting with the news media in your region to acknowledge and cover LGMD Awareness Day?

  • Contacting your State and local elected officials for an official LGMD Awareness Day Proclamation

  • Sending a press release to the media in your region/country/state.

  • Organizing an awareness-raising activity or event on or around September 30? (walk/roll, concert, block party, dance, car wash, theater, etc.)

  • Engaging local organizations as supporters.

For LGMD Awareness Day resource materials which you can download and use, click here.

Remember, by telling your story and sharing your experiences, you help others understand what it is like to live with LGMD. You play an important role in this global awareness campaign. Reach out to your local media reporters, including TV, radio, newspapers, online reporters, and bloggers, and give them information about LGMD Awareness Day and your particular story.

Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day is a collaborative effort to globally raise awareness of the rare neuromuscular diseases known as LGMD. And we need your assistance!’

We invite everyone who has been diagnosed with limb-girdle muscular dystrophy (LGMD), family members, health care professionals, researchers, drug developers, and public health organizations as well as any other group with an interest in LGMD to join together and help us increase awareness of these rare and progressive neuromuscular diseases which historically have not gotten the attention that they deserve.

Learn more about our current “Call To Action” Campaigns and how you can help raise awareness in your community!


Take a moment to shine a light on the importance of LGMD Awareness!

Celebrate the annual Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day on September 30th, 2023, a global collaborative effort to raise awareness for individuals living with LGMD. As Ambassadors from diverse backgrounds, we unite to adapt activities, spread awareness, and demonstrate the strength of the LGMD community. Join patients, families, organizations, and professionals to become an LGMD Awareness Day Ambassador, showcasing the power of unity and engagement without any costs involved.

Our Advocacy Partners