Meet Girdie, Our LGMD Ambassador
HOW WILL YOUR ADVOCACY EFFORTS HELP THOSE LIVING WITH LGMD?
“By bringing my flavorful and fun loving spirit on my global journey, I will spark an interest in limb-girdle muscular dystrophy (LGMD) awareness. I will let them know that there is research being done to find a cure for many forms of LGMD and give them hope. I will teach that awareness is power and power brings cures, treatments, and changes policies. I will demonstrate that together we are stronger.” ~ Girdie
Join Girdie – Become an LGMD Ambassador
By partnering with Girdie, you can help teach others about Limb Girdle Muscular Dystrophy (LGMD) , which will enable communities to connect and will unite families with people who can work to develop treatments for LGMD. Help raise awareness of LGMD on social media and within your community.
It is an easy 3 step process:
Help Girdie Share a Few Important Facts About LGMD
Limb-girdle muscular dystrophy (LGMD) is a rare neuromuscular condition that causes severe muscle loss and effects people all over the world.
Early symptoms of limb-girdle muscular dystrophy (LGMD) may include difficulty climbing stairs, frequent falls, difficulty rising from a seated position or even the inability to stand on toes.
Currently there is no cure, but every year, science is moving closer to a treatment for limb-girdle muscular dystrophy (LGMD) thanks to the members of the scientific community and the organizations who fund their research efforts.
Girdie has been busy raising awareness of LGMD!
A Special Thank You Goes Out To:
- Rich Yates for creating “Girdie”, our LGMD Ambassador.
- Karen Cole, Sarah Emmons, Yumi Shim, and Joshua Thayer, for all the work they did to create and introduce our new “Girdie” campaign in 2020.
- The LGMD Foundations, biotech, pharmaceutical companies, researchers, clinicians, industry leaders, and the greater LGMD community worldwide for working collaboratively to raise awareness of LGMD this year.