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TOGETHER WE ARE STRONGER

Raising awareness and advocating for individuals with LGMD

TOGETHER WE ARE STRONGER

Raising awareness and advocating for individuals with LGMD

TOGETHER WE ARE STRONGER

Raising awareness and advocating for individuals with LGMD

ABOUT US

LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy organization dedicated to globally raising awareness of the rare neuromuscular conditions known as limb-girdle muscular dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public.

By increasing awareness of and advocating for individuals living with limb-girdle muscular dystrophy, we hope individuals living with this progressively debilitating disease will have an easier time accessing diagnosis, care, and treatment around the world.

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Girdieworld
Meet Girdie – the LGMD Ambassador

30+ subtypes

of LGMD, each caused by
mutations in a different gene.

Up to 500,000

collectively affected people worldwide.

LGmd 2a/r1

globally the most prevalent LGMD subtype.

Countdown To

LGMD Awareness Day

September 30, 2021

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Facts about Limb-Girdle Muscular Dystrophy (LGMD)

Limb-girdle muscular dystrophy (LGMD) is a term for a group of rare conditions that cause weakness and wasting of the muscles in the arms and legs. The muscles most affected are those closest to the body (proximal muscles), specifically the muscles of the shoulders, upper arms, pelvic area, and thighs.

LGMD IS A GENETIC DISORDER

It is not contagious, caused by an injury or any specific activity.

LGMD CAN AFFECT THE HEART AND LUNGS

In some forms of LGMD, breathing and cardiac issues may develop.

LGMD IS A PROGRESSIVE CONDITION

The rate of progression can vary from person to person even within the same LGMD sub-type and in families.

LGMD SYMPTOMS CAN APPEAR AT ANY AGE

Typically, the earlier the onset of the disease, the more severe the symptoms over time.

VIEW ALL FACTS

Facts about Limb-Girdle Muscular Dystrophy (LGMD)

 Limb-Girdle Muscular Dystrophy (LGMD) is a term for a group of rare conditions that cause weakness and wasting of the muscles in the arms and legs. The muscles most affected are those closest to the body (proximal muscles), specifically the muscles of the shoulders, upper arms, pelvic area, and thighs.

LGMD IS A RARE INHERITED DISEASE

LGMD is not contagious or caused by an injury or any specific activity.

LGMD CAN AFFECT THE HEART AND LUNGS

In some forms of LGMD, breathing and cardiac issues may develop.

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LGMD IS A PROGRESSIVE CONDITION

The rate of progression can vary from person to person even within the same LGMD sub-type.

LGMD SYMPTOMS CAN APPEAR AT ANY AGE

Typically, the earlier the onset of the disease, the more severe the symptoms over time.

VIEW ALL FACTS

QUICKLINKS

DIAGNOSTIC RESOURCES
GENETIC TESTING
GRANT OPPORTUNITIES
GRASP-LGMD PHYSICICANS
LGMD AWARENESS DAY
LGMD FACTS & INFO
LGMD ORGANIZATIONS
PATIENT REGISTRIES
Social Media support
SPOTLIGHT INTERVIEWS