LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as limb-girdle muscular dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public.
By increasing awareness of and advocating for individuals living with limb-girdle muscular dystrophy, we hope individuals living with this progressive debilitating disease will have an easier time accessing diagnosis, care and treatment around the world.
We also coordinate a worldwide Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day annually on Sept. 30.
LGMD Awareness Foundation, Inc. (EIN: 85-1504937) is a 501 (c)(3) tax-exempt public charity. As such, all donations are fully tax deductible. Download our IRS determination letter here.