Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day is intended to be an annual collaborative effort to globally raise awareness of individuals living with limb-girdle muscular dystrophy.
The eighth annual “Limb-Girdle Muscular Dystrophy Awareness Day” will be celebrated worldwide on September 30th, 2022.
For far too long, limb-girdle muscular dystrophy has been an orphaned rare disease that has not gotten the attention of researchers, health care providers, or the general public, that it deserves. Even many patients living with LGMD have limited knowledge of their LGMD diagnosis and progressive disease process.
We invite all individuals with LGMD, family members, organizations, health care professionals, researchers, drug developers, public health organizations, and any association with an interest in LGMD to join together and help us increase awareness of these rare and progressive neuromuscular diseases which historically have not gotten the attention that they deserve.
Our goal is to globally draw attention to this group of rare neuromuscular diseases which can impact the lives of many from childhood through adulthood as LGMD occurs in all parts of the world & among all ethnic groups.
We believe that through social media, participation and awareness will have a broader reach and impact. To keep abreast of our global initiatives and the educational components of LGMD Awareness Day, please join us on Facebook. We are providing educational posts on LGMD, featuring LGMD “Spotlight Interviews” and are also posting information that is pertinent to the entire community.