Limb-Girdle Muscular Dystrophy Awareness Day is an annual collaborative effort to globally raise awareness of individuals living with limb-girdle muscular dystrophy (LGMD) and is held on September 30th.
The seventh annual Global “LGMD Awareness Day” will be held on September 30, 2021.
For far too long, limb-girdle muscular dystrophy has been an orphaned rare disease that has not gotten the attention of researchers, health care providers, or the general public, that it deserves. Even many patients living with LGMD have limited knowledge of their LGMD diagnosis and progressive disease process.
Our goal is to globally draw attention to this group of rare neuromuscular diseases which can impact the lives of many from childhood through adulthood as LGMD occurs in all parts of the world & among all ethnic groups.
We believe that through social media, participation and awareness will have a broader reach and impact. To keep abreast of our global initiatives and the educational components of LGMD Awareness Day, please join us on Facebook.