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SPOTLIGHT INTERVIEWS

Are you an Individual living with limb-girdle muscular dystrophy (LGMD)? A researcher working to find a cure and treatment for LGMD? A clinical staff member working with the LGMD community or a representative from an organization focused on LGMD? If so, please consider volunteering to be featured in an LGMD Spotlight Interview. By telling your story and sharing your experiences, you can help raise awareness of LGMD. You can play an important role in this global awareness campaign.

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INDIVIDUALS WITH LGMD

INDIVIDUAL WITH LGMD: Lena

Name:         Lena              Age:  44 Country:  USA LGMD Sub-Type:  Limb-Girdle Muscular Dystrophy type 2J/R10 Titan-related   At what age were you diagnosed? I was diagnosed at age 42. What were your first symptoms? As a [...]

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LGMD RESEARCHERS

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LGMD CLINIC STAFF

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LGMD ORGANIZATIONS

ORGANIZATION: Stichting Spierkracht

LGMD ORGANIZATION:      Stichting Spierkracht WEBSITE:   www.stichtingSpierKracht.com FACEBOOK:        https://www.facebook.com/stichtingspierkracht.nl INSTAGRAM:     https://www.instagram.com/stichting_spierkracht WHAT LGMD SUB-TYPE DOES YOUR ORGANIZATION FOCUSES ON:  We focus on LGMD2D / R3 Alpha Sarcoglycan-related IF YOU FOCUS ON A SUB-TYPE, IS [...]

ORGANIZATION: Inclusive

ORGANIZATION:  Inclusive WEBSITE:      https://www.iminclusive.com FACEBOOK:  https://www.facebook.com/Iminclusive INSTAGRAM: @iminclusive IS THERE A SPECIFIC LGMD SUB-TYPE YOUR ORGANIZATION FOCUSES ON? * Inclusive supports people living with LGMD, and Inclusive works towards making online and offline environments [...]

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