NMD United is a non-profit organization composed of adults living with neuromuscular disabilities. This organization generously offers a variety of small grants to a help offset some of the hidden costs of a disability that individuals living on a fixed income or low wages are forced to pay in order to maintain their independence.
- Any adult living with a neuromuscular disability* is eligible to apply for and receive an ALEF Grant.
- Individuals are eligible to apply for and receive up to 3 grants totaling no more than $500 altogether. Former grant recipients of past years are eligible to re-apply.
- Grants are awarded on a first-come, first-serve basis as long as funds remain available. Individuals experiencing an immediate financial hardship, such that their health, safety and/or ability to independently live in the community is impacted, are strongly encouraged to apply.
- Grant requests are subject to approval by NMD United’s ALEF Committee.
- Full details regarding the current ALEF grants available can be found on the NMD United Website
The Speak Foundation is a non-profit organization that is run entirely by volunteers who live with a form of Muscular Dystrophy or who have a loved one with a disability. We are a charitable, faith-based organization that is dedicated to helping people of any age cope with and overcome the challenges of living with a neuromuscular disease (NMD).
- The C.A.R.E. Program gifts newly diagnosed limb-girdle muscular dystrophy patients with a box full of helpful tools that include smart technology and items donated from the International Consortium of LGMD organizations. (This program is available to patients who have received a diagnosis of LGMD as of May 1, 2021.) Open to U. S. residents only.
- The HOPE Project offers stipends to qualified individuals to help cover the costs of mobility and DME equipment. Open to U. S. residents only. Stipends up to $500 per qualified individual to help cover the cost of mobility and DME equipment.
- Full details regarding the current Speak Foundation programs can be found on the Speak Foundation website
Cash grants, rebates, used equipment, and donated labor are all options to make your home or vehicle modification budget cover more. These resources may help.
Disabled Dealer: Online marketplace for used accessible vehicles and other equipment. Learn more
National Resource Center on Supportive Housing and Home Modification: Offers a state directory for finding local resources for home modification financial aid. Learn more
National Mobility Equipment Dealers Association: Offers information on funding and financing, a guide to mobility equipment options, and a dealer locator. Visit their website for more details.
The Mobility Resource: Lists state grants and other resources for financing accessible vehicles. Visit their website for details
Rebuilding Together: Helps people build new homes or modify existing ones to make them more accessible. Learn more
Rural Housing Repair Loans and Grants: Funded by the US Department of Agriculture. Recipients must be 62 years or older and from low-income households, and funds may be used to modify existing residences. Learn more
State Grants: Find the Housing and Urban Development (HUD) office in your state to look for grants related to modifications. Go to their website