University of Iowa Wellstone Dystroglycanopathies Patient and Family Conference
June 12 - June 14
This is a can’t-miss event to participate in the Natural History Study and learn the most recent updates on research and trials for LGMD2I/R9!
Registration for the 2026 Iowa Wellstone Dystroglycanopathy Patient & Family Conference is open!
Location: Hyatt Regency Hotel and Conference Center, 300 E 9th St., Coralville, IA 52241
Date: June 12-13, 2026
Join us for Wellstone study updates, meet industry and advocacy representatives, connect with friends, listen to talks about Clinical Trials, Advocacy, Caregivers Session, Exercise with Muscular Dystrophy, Pilates for everyone, and Q&A session with Wellstone staff.
Wrap up the day with Social Hour, Dinner, and Trivia!
Important Information for the 2026 conference:
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La conférence se concentrera sur la participation en personne, mais les principales sessions seront également retransmises en direct.
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Only the large sessions will be live streamed (via Zoom), smaller breakout sessions will NOT be available virtually.
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There will be a supervised play area for children during the conference sessions (9:00 AM-12:15 PM and 1:15 PM-4:15 PM).
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Travel reimbursement is available to participants who complete study exams.
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Indiquez votre préférence en matière de rendez-vous d'examen dans le formulaire d'inscription - les rendez-vous sont les premiers arrivés, les premiers servis !
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Des examens d'étude peuvent également être programmés à d'autres moments de l'année en contactant Carrie Stephan (coordonnées ci-dessous).
Link to reserve rooms at the Hyatt Regency:
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Make sure to book the rooms under the group code: G-WELL
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Hyatt King and Queen-Queen Rooms: $149/night
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The deadline to reserve a room at the Hyatt is MAY 20th, 2026!
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24-hour access to the fitness center
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Parking is available in the adjacent Iowa River Landing North Parking Ramp: $10/day
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Watermill Kitchen + Bar is open 6:30am-9pm (restaurant) & 11am-12am (bar)
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The Café coffee shop is open 6am – 11am, Monday-Sunday
Other Hotels near the area:
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Comfort Inn & Suites- 214 9th St Coralville, IA 52241 (0.7 miles away)
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Homewood Suites by Hilton Coralville- 921 E 2nd Ave, Coralville, IA 52241 (0.4 miles away)
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Staybridge Suites Iowa City- Coralville- 801 E 2nd Ave, Coralville, IA 52241 (0.4 miles away)
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Super 8 by Wyndham- 611 1st Ave, Coralville, IA 52241 (0.7 miles away)
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Hampton Inn Iowa City/Coralville- 1200 First avenue, Coralville, IA 52241 (0.8 miles away)
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Quality Inn Coralville- 209 9th St, Coralville, IA 52241 (0.6 miles away)
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Super 7 Motel- 810 1st Ave, Coralville, IA 52241 (0.6 miles away)
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Heartland Inn- 87 2ns St, Coralville, IA 52241 (0.7 miles away)
Lien d'inscription : https://uiowa.qualtrics.com/jfe/form/SV_6wXW0T1VdiclPWC
Questions?
Contact: Carrie Stephan Carrie-stephan@uiowa.edu
319-356-2673
Contact: Paige Sinksen Paige-sinksen@uiowa.edu
