ORGANIZATION: Conquistando Escalones
NAME OF ORGANIZATION: CONQUISTANDO ESCALONES WEBSITE: www.conquistandoescalones.org FACEBOOK: www.facebook.com/conquistandoescalones TWITTER: @AceDistrofia WHAT LGMD SUB-TYPE DOES YOUR ORGANIZATION FOCUSES ON: We focus on Limb Girdle Muscular Dystrophy type 1F (LGMD1F) IF YOU FOCUS ON A SUB-TYPE, IS THERE A REGISTRY AND HOW CAN PATIENTS JOIN? Yes, we have created a patient registry and patients can contact us by sending an email to [email protected] IS YOUR ORGANIZATION A NON-PROFIT? IF SO, WHAT TYPE: Yes, we are registered in Span and in Italy. WHAT INSPIRED THE CREATION OF YOUR ORGANIZATION: The Association was created because of the necessity to spread [...]