Girdie: Our LGMD Ambassador and Mascot

August 30, 2020|Uncategorized|

LGMD "Spotlight Interview" LGMD Ambassador:  Girdie Affliation:           LGMD Awareness Foundation, Inc. ROLE:                    Advocacy Ambassador WHAT INSPIRED YOU TO FOLLOW A CAREER IN LIMB-GIRDLE MUSCULAR DYSTROPHY ADVOCACY? As an LGMD LIMEmoji, I met a group of amazing, talented, funny, attractive folks. They caught my attention because they were all wearing lime green.  I found out that they all have one thing in common: they are all living with the rare neuromuscular disease Limb-Girdle Muscular Dystrophy (LGMD).  I discovered how they work together to connect the LGMD community to each other.  They unite LGMD families with people who work to develop [...]

Individual with LGMD: Tasha

September 12, 2019|Individuals with LGMD - Interviews, LGMD2L, Uncategorized|

LGMD “SPOTLIGHT INTERVIEW” Name:  Tasha              Age: 46 Country: United States LGMD Sub-Type: LGMD2L At what age were you diagnosed: I was diagnosed at the age of 13 but had problems since about the age of 8.  They said it was growing pains and then several wrong diagnoses were given.  At the age of 13, my blood levels were looked at and were off the chart. What were your first symptoms: I experienced weakness and horrible aching in both calf muscles after exercising. Do you have other family members who have LGMD: Yes, my younger brother has the same diagnosis of [...]

Volunteer to be Featured

January 28, 2017|Individuals with LGMD - Interviews, Uncategorized, Volunteer to be Featured in an Interview|

Are you An Individual Living with Limb Girdle Muscular Dystrophy (LGMD)?A Researcher working to find a cure and treatment for LGMD?A Representative from an organization focused on LGMD? If so, please consider volunteering to be featured in an upcoming "LGMD Spotlight Interview." By telling your story and sharing your experiences, you can help raise awareness of LGMD.  You can play an important role in this global awareness campaign. If you are interested in sharing your story, please complete the questionnaire and release form provided below that fits your appropriate category. LGMD Spotlight Interview Resources Individual with LGMD: Questionnaire for Individuals to [...]

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