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LGMD Day on the Hill


S E P T E M B E R 1 7, 2 0 2 4
Evening Welcome Dinner & Hill Day Preparation
4:00pm-4:30pm: Welcome LGMD Advocacy Leaders & Intro
4:30pm-7:00pm: Welcome Dinner, Training & Education (Mandatory)

S E P T E M B E R 1 8, 2 0 2 4
Hill Day
8:00am-9:00am: Grab & Go Breakfast and Hype Up!

9:00am-10:00am: Travel to Hill/Clear Security
10:00am-11:30am: Scheduled Congressional Appointments
11:30am: Break
12:00pm-1:30pm: Lunch on the Hill
• Expert Presentation on LGMD
• 3-4 Patient/Caregiver Testimonials
• Patient Representative to Describe/Inform Importance of Legislative Asks
1:30pm-3:30pm: Continue Congressional Appointments

3:30pm-4:00pm: Wrap Up



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