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This educational event empower individuals and families with knowledge and resources specific to Limb-girdle muscular dystrophy (LGMD). Information will be provided by experts in the field and symposiums offer an opportunity for individuals living with LGMD and their loved ones to connect socially.

The MDA Engage LGMD Symposia will be held on Saturday, June 4, 2022.

Speakers and Topics:

Research and Clinical Trials- Presented by Dr. Nick Johnson from VCU

Nutrition- Presented by Mary Jane Voss, RDN, LDN, from M Health Fairview University of MN Masonic Children’s Hospital

Genetic Testing- Presented by Katelyn Payne, GC, from IU Riley Children’s

Adaptive Equipment and Technology- Presented by Amber Ward, MS, OTR/L, BCPR, ATP/SMS, FAOTA, from Atrium Health

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

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