LGMD (Limb Girdle Muscular Dystrophy) Awareness Day is a day dedicated to raising awareness about Limb Girdle Muscular Dystrophy, which is a group of rare genetic disorders that cause progressive weakness and wasting of the muscles.
Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.
You are invited to the 2022 LGMD Global Advocacy Summit! This global virtual event is for those living with any form of LGMD and those suspected to have LGMD.
A key goal of the event is to inform and educate patients on ways to plug into advocacy early within the process of drug development in the USA and in Europe. Patients will also have the unique opportunity to connect with pharma companies that are developing clinical trials and potential treatments for LGMDs. Patients can sign up to become a delegate at the summit as well, for the opportunity to participate in a unique round-table discussion.
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