INDIVIDUAL WITH LGMD: Daniella

Name: Daniella

Age: 10

Country: United States

LGMD Sub-Type: LGMD 2D / LGMD R3 a-sarcoglycan-related

At what age were you diagnosed?
2023

What is your greatest accomplishment?
Helps to othersThis year I am a VBS leader!

What were your first symptoms?
Weakness

How has LGMD influenced you into becoming the person you are today?
I’m more thankful for my family and friends who support me

Do you have other family members who have LGMD?
No

What do you want the world to know about LGMD?
We need the cure!

What do you find to be the greatest challenges in living with LGMD?
Things like getting up off the ground or brushing hair or getting dressed

If your LGMD could be “cured” tomorrow, what would be the first thing that you would want to do?
Go to the park go to my first bedroom