INDIVIDUAL WITH LGMD: Sabesan

Name: Sabesan
Age: 24
Country: India
LGMD Sub-Type: LGMD 2B / LGMD R2 dysferlin-related
At what age were you diagnosed?
I was diagnosed at the age of 18.
What is your greatest accomplishment?
Although I have LGMD, I have completed post graduate in biostatistics. I am working as Biostatistician in central government institute.
What were your first symptoms?
First symptoms,I have feeled that could not run completely. I feel tired and pain in the thigh muscles.
How has LGMD influenced you into becoming the person you are today?
First time that diagnosed with LGMD2B I felt anxiety and depression. I have even cried. My family members there is no peace after that I have got this condition. Starting it gives negative thoughts in my mind butover the years, it becomes positive.
Do you have other family members who have LGMD?
I have one elder sister. She is normal. No one in my family members have LGMD.
What do you want the world to know about LGMD?
People of world should know about LGMD. Each country,even within states, should do awareness atleast a year. If new product comes to market,they advertise using big personalities. Like that they should promote us about our awareness and condition.
What do you find to be the greatest challenges in living with LGMD?
I could not go independently outside of campus/home. I need a support from caretaker to move on for shopping and other places. I could not able to ride bike/car. I could not able to lift weight. I could not participate in functions.
If your LGMD could be “cured” tomorrow, what would be the first thing that you would want to do?
During LGMD suffered period many people helped me. If I was cured tomorrow, I would help them and meet them directly. I will say thank you. Second point ,I will say to my community about this condition.






