Name:  Lori  Age: 47 yrs. old

Country: United States

LGMD Sub-Type: LGMD2i

At what age were you diagnosed:

I was diagnosed at the age of 41.

What were your first symptoms:

The first symptoms that I noticed were muscle weakness and falling although at the time I didn’t realize that they were anything serious.

Do you have other family members who have LGMD:

Yes, my younger sister also has LGMD2i.

What do you find to be the greatest challenges in living with LGMD:

My greatest challenge is lacking the energy and physical strength to do everything I used to do and everything I want to do.

What is your greatest accomplishment:

My greatest accomplishments are raising my two sons (ages 17 and 24) and becoming an attorney.

How has LGMD influenced you into becoming the person you are today:

Having LGMD causes me to be more grateful for what I can do and for the people in my life.

What do you want the world to know about LGMD:

I would like people to know that LGMD is a genetic disease for which there is no treatment or cure at this time.

If your LGMD could be “cured” tomorrow, what would be the first thing that you would want to do:

If I was cured tomorrow, I would like to go hiking or for a long walk.


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