Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day is intended to be an annual collaborative effort to globally raise awareness of individuals living with LGMD. The ninth annual “Limb-Girdle Muscular Dystrophy Awareness Day” will be celebrated worldwide on September 30th, 2023.

As individuals with LGMD we live in different geographic areas, speak different languages and observe different customs. We invite you to become an Ambassador for LGMD Awareness Day to show your support for our 2023 campaign! As an Ambassador for LGMD Awareness Day, you are encouraged to adapt activities in accordance with your customs. Our goal is to reach the widest audience possible!

There is great strength in awareness, understanding and unity. The LGMD community demonstrates global connectivity each year when we campaign together and gain recognition for limb-girdle muscular dystrophy (LGMD). With over 30 different genetic types of LGMD, the act of collaborating globally makes us stronger than we could ever be alone. Whether you are a long-time community member, or new to the scene, your participation in the LGMD Awareness Day activities is important. Awareness can spread much faster with more individuals, from all parts of the world, sharing their spirit remotely through reposts, shout outs and snaps of the LGMD Awareness sticker to your favorite platforms. There is power in action!

We invite all patients, family members, organizations, health care professionals, researchers, drug developers, public health organizations and any association with an interest in LGMD to join together and become an “Ambassador” of Limb Girdle Muscular Dystrophy Awareness Day.

There are no costs involved! We encourage you to show your support and engagement.

EXAMPLES OF HOW TO PROMOTE AWARENESS

As an interested participant, you probably have some ideas about how to promote LGMD Awareness in your area. But, just in case you don’t here are some examples of how you can help raise awareness.

As an Ambassador, you can help raise awareness of LGMD by:

• Posting the LGMD Awareness Day logo on your website and in your publications?
• Following our posts on Facebook and then liking & sharing the posts with your friends.
• Volunteering to be featured an upcoming “LGMD Spotlight Interview“
• Changing your Facebook profile photo to our “I Support” logo
• Changing your Facebook cover photo to our promotional logo
• Linking your website to www.LGMD-info.org
• Writing letters to your local policy and decision makers to share information and raise awareness of LGMD.
• Interacting with our social media, and use the available resource tools to promote LGMD Awareness Day
• Interacting with the news media in your region to acknowledge and cover LGMD Awareness Day?
• Contacting your State and local elected officials for an official LGMD Awareness Day Proclamation
• Sending a press release to the media in your region/country/state.
• Organizing an awareness-raising activity or event on or around September 30? (walk/roll, concert, block party, dance, car wash, theater, etc.)
• Engaging local organizations as supporters.

For LGMD Awareness Day resource materials which you can download and use, click here.

Remember, by telling your story and sharing your experiences, you help others understand what it is like to live with LGMD. You play an important role in this global awareness campaign. Reach out to your local media reporters, including TV, radio, newspapers, online reporters, and bloggers, and give them information about LGMD Awareness Day and your particular story.