Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day is intended to be an annual collaborative effort to globally raise awareness of individuals living with LGMD. The ninth annual “Limb-Girdle Muscular Dystrophy Awareness Day” will be celebrated worldwide on September 30th, 2023.
As individuals with LGMD we live in different geographic areas, speak different languages and observe different customs. We invite you to become an Ambassador for LGMD Awareness Day to show your support for our 2023 campaign! As an Ambassador for LGMD Awareness Day, you are encouraged to adapt activities in accordance with your customs. Our goal is to reach the widest audience possible!
There is great strength in awareness, understanding and unity. The LGMD community demonstrates global connectivity each year when we campaign together and gain recognition for limb-girdle muscular dystrophy (LGMD). With over 30 different genetic types of LGMD, the act of collaborating globally makes us stronger than we could ever be alone. Whether you are a long-time community member, or new to the scene, your participation in the LGMD Awareness Day activities is important. Awareness can spread much faster with more individuals, from all parts of the world, sharing their spirit remotely through reposts, shout outs and snaps of the LGMD Awareness sticker to your favorite platforms. There is power in action!
We invite all patients, family members, organizations, health care professionals, researchers, drug developers, public health organizations and any association with an interest in LGMD to join together and become an “Ambassador” of Limb Girdle Muscular Dystrophy Awareness Day.
There are no costs involved! We encourage you to show your support and engagement.