Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. Our Awareness Day Toolkit is designed to empower and engage our community in advocacy like never before.
LGMD Awareness Day is an annual effort to draw attention to this rare disease.
Join us as an “Ambassador” for Limb-Girdle Muscular Dystrophy Awareness Day.
Our LGMD Awareness Day Resources page offers a variety of tools and materials.
Your sponsorship will propel us towards a future where every individual with LGMD has access to the care, support, and treatments they deserve.
Explore our Knowledge Base for comprehensive information on Limb-Girdle Muscular Dystrophy (LGMD).
Discover a comprehensive list of global resources for LGMD genetic testing.
Learn key facts and familiarize yourself with crucial terminology about LGMD.
LGMD resources for patients, caregivers, and healthcare providers.
Connect with the LGMD community through news, blogs, and more.
Advocacy support and helpful tools and resources for staff and patients.
Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.
Read the personal journeys of those navigating life with LGMD.
Showcasing the groundbreaking work of clinical researchers.
Highlighting the exceptional stories of clinicians working in the field of LGMD.
Highlighting the organizations making a difference in the world of LGMD.
Click here for event details & tickets!
