The LGMD Awareness Foundation is on a mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. As we celebrate a decade of progress, we will be rolling out an Awareness Day Toolkit in spring of 2024, designed to empower and engage our community in advocacy like never before.
Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.
Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child
2024-10-13T00:00:00+00:00
This event has passed.
Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child
June 27 @ 7:00 pm - 8:15 pm
Are you a single parent to a child or children with a rare disease such as LGMD?
The National Organization for Rare Disorders, Inc. (NORD) invites you to join them for a comprehensive, supportive, and closed-door discussion about raising a rare disease child or children as a single parent.
Date: Thursday, June 27, 2024
Time: 7:00 p.m. – 8:15 p.m. ET
Location: Virtual via Zoom
You will hear from single rare parents about tools, resources, and information they have utilized to navigate the unique challenges of raising their kids. This session will offer strategies to help both you and your child thrive. Plus, you will get to connect with other parents facing similar journeys and leave feeling empowered and equipped to tackle the challenges of raising a child with a rare disease with confidence and resilience.