Name: 2022 RARE Patient Advocacy Summit
Start: 2022-09-12T08:00:00-12:00
End: 2022-09-14T17:00:00-12:00
Location: Town & Country Hotel

LGMD Awareness Day

LGMD (Limb Girdle Muscular Dystrophy) Awareness Day is a day dedicated to raising awareness about Limb Girdle Muscular Dystrophy, which is a group of rare genetic disorders that cause progressive weakness and wasting of the muscles.

LGMD Awareness Day

Spotlights

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

List
Month
Day

All Day

September 12, 2022 - September 15, 2022

7th International Myology Congress

Acropolis Congress Center 1 Esplanade John Fitzgerald Kennedy, Nice

Ongoing

September 12, 2022 @ 8:00 am - September 14, 2022 @ 5:00 pm

2022 RARE Patient Advocacy Summit

Town & Country Hotel 500 Hotel Cir N, San Diego

Meet
Girdie

LGMD Awareness Day

About

Initiatives

Resources

Awareness Day 2024

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Events

7th International Myology Congress

2022 RARE Patient Advocacy Summit

Meet Girdie

LGMD Awareness Day

About

Initiatives

Resources

Awareness Day 2024

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Events

Meet
Girdie