At what age were you diagnosed?
30

What is your greatest accomplishment?
Actor, singer, dancer in shows on Broadway, Off-Broadway, National Tours.

What were your first symptoms?
Leg weakness

How has LGMD influenced you into becoming the person you are today?
Yes, I became more focused on my spiritual interests and became a minister.

Do you have other family members who have LGMD?
Yes. Two younger sisters.

What do you want the world to know about LGMD?
Early on it was about “I can do what you can do but differently.” Now, everything takes time.

What do you find to be the greatest challenges in living with LGMD?
Nowadays, having enough energy to get more accomplished.

If your LGMD could be “cured” tomorrow, what would be the first thing that you would want to do?
Start driving again and take a road trip.