August 13, 2022|Individuals with LGMD - Interviews, LGMD2C|

Name:  Arthur Age:  13 Country:  France LGMD Sub-Type:  LGMD 2C/R5 Gamma Sarcoglycan-related   At what age were you diagnosed? I was diagnosed when I was 9 years old. What were your first symptoms? Since I was little I have had trouble running and getting up from the ground, but also climbing stairs.  Do you have other family members who have LGMD? No, I have a sister but she doesn’t have LGMD. What do you find to be the greatest challenges in living with LGMD? It’s not easy to make our difficulties understood when we are children, often people believe that [...]


July 13, 2018|Individuals with LGMD - Interviews, LGMD2C|

LGMD “SPOTLIGHT INTERVIEW” Name: Majed   Age:  20   Country:  Syria / Germany LGMD Sub-type:  LGMD2C   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at age 8.   WHAT WERE YOUR FIRST SYMPTOMS: The symptoms began to appear when I was 7 years old.  As a young child, I walked on my toes.    DO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE LGMD: Yes, my brother and two of my uncles (my mother’s brothers) also have been diagnosed with LGMD2C. (My brother still lives in Syria and his name is Younis. He was previously featured in an LGMD Spotlight Interview.) [...]

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