LGMD SPOTLIGHT INTERVIEW

Name:      Amanda      Age: 34

Country:  Canada

LGMD Sub-Type:  LGMD2C 

 

AT WHAT AGE WERE YOU DIAGNOSED:

I was diagnosed at the age of 9.

WHAT WERE YOUR FIRST SYMPTOMS:

I walked on my toes, and often fell unexpectedly as a child – overtime my body started to feel heavy

DO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE LGMD:  

No – just me!

WHAT DO YOU FIND TO BE THE GREATEST CHALLENGES IN LIVING WITH LGMD:

At various times in my life I have felt more like a spectator

Also, relying on other people

HOW HAS LGMD INFLUENCED YOU INTO BECOMING THE PERSON YOU ARE TODAY:

It has placed the emphasis on gratitude as well as the importance of perspective. Things don’t stop me, or impact me the same way it does others – I would attribute that to managing LGMD

WHAT DO YOU WANT THE WORLD TO KNOW ABOUT LGMD:

I want the world to know that LGMD impacts every facet of someone’s life.  Despite the fact that most people who are well adjusted and productive  make it look easy.

IF YOUR LGMD COULD BE “CURED” TOMORROW, WHAT WOULD BE THE FIRST THING THAT YOU WOULD WANT TO DO:

If LGMD was cured tomorrow, I would stand up and hug my family with both arms & cry tears of joy!

 

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