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Registration for the 2021 Iowa Wellstone Dystroglycanopathy Patient & Family Conference is open!

Date: Saturday July 17, 2021

Location: Coralville Marriott Hotel and Conference Center, Coralville, Iowa


Deadline for conference registration is FRIDAY JULY 2, 2021!



Join us for research study updates,  clinical and research Q&A sessions, and networking with other patients and families!


** Please read the information below carefully as there are changes to the 2021 conference format.

  • The conference will be a hybrid of in-person attendance and online viewing of sessions.
  • The number of participants allowed to attend the conference in person will be limited per University of Iowa pandemic restrictions.
  • We encourage in-person attendees to be vaccinated prior to travel.
  • Masks and social distancing during the conference will be required.
  • No child playroom will be provided at the Marriott Hotel.
  • Travel reimbursement is available to participants who schedule study exams.
  • You will receive an email confirmation after you register to attend the conference in person. Do not make non-refundable travel plans until you receive this confirmation!


Registration link: https://uiowa.qualtrics.com/jfe/form/SV_cYXi3qI0vQjohcG



Lodging for the UI Wellstone Patient & Family Conference

The Coralville Marriott Hotel & Convention Center is holding a room block until June 25, 2021 for $115/night.

Use this link: Book your group rate for UI Wellstone Patient and Family Conference


If you need an accessible room, after your online room reservation is complete, please call Jennifer at (319) 887-5016 to pre-block an accessible room (based on availability).


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