04/08/2015

NAME:   Melissa  AGE:  47 Yrs. Old

COUNTRY:  United States
LGMD Sub-Type:  LGMD2i

AT WHAT AGE WERE YOU DIAGNOSED:

I was diagnosed at the age of 18

WHAT WERE YOUR FIRST SYMPTOMS:

As a child, I was clumsy.

DO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE LGMD:

No, I am the only member in my family diagnosed with limb girdle muscular dystrophy.

WHAT DO YOU FIND TO BE THE GREATEST CHALLENGES IN LIVING WITH LGMD:

The greatest challenge for me is not being able to get up from a chair.

WHAT IS YOUR GREATEST ACCOMPLISHMENT:

My greatest accomplishment is growing my non-profit, Legacy Counseling Center, into a one and a half million dollar organization that helps thousands of people annually.

HOW HAS LGMD INFLUENCED YOU INTO BECOMING THE PERSON YOU ARE TODAY:

I changed my career choice to something that would be wheelchair friendly, in case I would ever be in that position.

WHAT DO YOU WANT THE WORLD TO KNOW ABOUT LGMD:

At the moment there is no treatment or cure.

IF YOUR LGMD COULD BE “CURED” TOMORROW, WHAT WOULD BE THE FIRST THING THAT YOU WOULD WANT TO DO:

I would travel without boundaries like I used to.