The Limb-Girdle Muscular Dystrophy Awareness Day team has developed these resources to help you plan and implement your local LGMD Awareness Day efforts.

By telling your story and sharing your experiences, you help others understand what it is like to live with LGMD. You play an important role in this global awareness campaign. Reach out to your local media reporters, including TV, radio, newspapers, online reporters and bloggers, and give them information about LGMD Awareness Day and your particular story.

Below are a number of resources, including sample press releases, letters-to-the-editor, and governor’s letters and state proclamations that you can download and customize in less than 5 minutes….along with photos to use with social media. Feel free to use and share these LGMD Resource Tools with others.

Resource Material

PRESS & MEDIA RESOURCES

FREQUENTLY ASKED QUESTIONS
LGMD AWARENESS FLYERS
SAMPLE PRESS RELEASE
LGMD AWARENESS BROCHURE
SAMPLE LETTER TO THE EDITOR

SPOTLIGHT INTERVIEW RESOURCES: Individual

INDIVIDUAL QUESTIONNAIRE (English)
RELEASE OF INFORMATION FORM (English)
INDIVIDUAL QUESTIONNAIRE (Spanish)
RELEASE OF INFORMATION FORM (Spanish)

SPOTLIGHT INTERVIEW RESOURCES: Clinical Staff

Clinical Staff Questionnaire
RELEASE OF INFORMATION FORM (English)
RELEASE OF INFORMATION FORM (Spanish)

SPOTLIGHT INTERVIEW RESOURCES: Researcher

Researcher Questionnaire
RELEASE OF INFORMATION FORM (English)
RELEASE OF INFORMATION FORM (Spanish)

SPOTLIGHT INTERVIEW RESOURCES: Organization

LINK TO ORGANIZATION’S QUESTIONNAIRE
RELEASE OF INFORMATION FORM (English)
RELEASE OF INFORMATION FORM (Spanish)

PROCLAMATION RESOURCES

SAMPLE STATE PROCLOMATION
SAMPLE LETTER TO THE GOVERNOR

LOGO FILES FOR DOWNLOAD

LGMD AWARENESS DAY LOGO
FACEBOOK Cover PHOTO
MARK YOUR CALENDAR PHOTO
Girdie PHOTO
LOGO Brand Guide

* * * Please note: If you need a different photo or a higher resolution logo file, please e-mail us.