Name: 2022 RARE Patient Advocacy Summit
Start: 2022-09-12T08:00:00-12:00
End: 2022-09-14T17:00:00-12:00
Location: Town & Country Hotel

LGMD Awareness Day Toolkit

Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. Our Awareness Day Toolkit is designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit

Become a Sponsor

Your sponsorship will propel us towards a future where every individual with LGMD has access to the care, support, and treatments they deserve.

Download Sponsorship Form

There are no upcoming events.

There are no upcoming events.

Latest Past Events

September 30, 2022 @ 7:00 pm - 11:00 pm

Connecting for a Cure!

The Barn at Stoner Commons (Overlook Park) 605 Granite Run Drive, Lancaster

September 23, 2022 @ 10:00 am - 3:00 pm

Externally-Led Patient-Focused Drug Development Session On LGMD

Virtual

Free

September 12, 2022 @ 8:00 am - September 14, 2022 @ 5:00 pm

2022 RARE Patient Advocacy Summit

Town & Country Hotel 500 Hotel Cir N, San Diego

Meet
Girdie

LGMD Awareness Day Toolkit

About LGMD Awareness Day

Initiatives

Resources

Become a Sponsor

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Events

Latest Past Events

Connecting for a Cure!

Externally-Led Patient-Focused Drug Development Session On LGMD

2022 RARE Patient Advocacy Summit

Meet Girdie

LGMD Awareness Day Toolkit

About LGMD Awareness Day

Initiatives

Resources

Become a Sponsor

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Events

Latest Past Events

Meet
Girdie