09/22/2015: 

NAME: Bình  AGE: 30

Country: Vietnam

LGMD Sub-Type: LGMD2A / Calpainopathy

 

AT WHAT AGE WERE YOU DIAGNOSED:

I was diagnosed with LGMD when I was 14 years old

WHAT WERE YOUR FIRST SYMPTOMS:  

I experienced difficulty in walking, running, and climbing stairs

DO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE LGMD: 

No, I am the only person in my family with this diagnosis

WHAT DO YOU FIND TO BE THE GREATEST CHALLENGES IN LIVING WITH LGMD: 

The greatest challenge for me is that I cannot  do some things such as walking and running.  I tried to control my brain to have enough energy to do the activities that I want.

WHAT IS YOUR GREATEST ACCOMPLISHMENT:

One of my biggest achievement is that I have family, friends, and neighbors who encourage me to live a fairly optimistic life.

HOW HAS LGMD INFLUENCED YOU INTO BECOMING THE PERSON YOU ARE TODAY: 

I am ready to face all challenges!

WHAT DO YOU WANT THE WORLD TO KNOW ABOUT LGMD: 

I want the world to know that a cure is needed to treat and cure all the LGMD patients 🙂

IF YOUR LGMD COULD BE “CURED” TOMORROW, WHAT WOULD BE THE FIRST THING THAT YOU WOULD WANT TO DO:

If I were cure tomorrow, I would run and do everything I never could do!

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