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  • Awareness Day
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    LGMD Awareness Day Toolkit

    Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. Our Awareness Day Toolkit is designed to empower and engage our community in advocacy like never before.

    LGMD Awareness Day Toolkit

    About LGMD Awareness Day

    LGMD Awareness Day is an annual effort to draw attention to this rare disease.

    Learn more about LGMD Awareness Day

    Initiatives

    Join us as an “Ambassador” for Limb-Girdle Muscular Dystrophy Awareness Day.

    Become an ambassador

    Resources

    Our LGMD Awareness Day Resources page offers a variety of tools and materials.

    View LGMD Awareness Day resources

    Become a Sponsor

    Your sponsorship will propel us towards a future where every individual with LGMD has access to the care, support, and treatments they deserve.

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  • Knowledge Base
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    Knowledge Base

    Explore our Knowledge Base for comprehensive information on Limb-Girdle Muscular Dystrophy (LGMD).

    Genetic Testing

    Discover a comprehensive list of global resources for LGMD genetic testing.

    View LGMD genetic testing resources

    All About LGMD

    Learn key facts and familiarize yourself with crucial terminology about LGMD.

    Learn all about LGMD

    Navigate LGMD

    LGMD resources for patients, caregivers, and healthcare providers.

    Find resources to help navigate LGMD

    Community Network

    Connect with the LGMD community through news, blogs, and more.

    Connect with the LGMD community

    LGMD Advocacy Bundle (LAB) Program

    Advocacy support and helpful tools and resources for staff and patients.

    Download Advocacy Bundle Resources
  • Spotlights
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    Spotlights

    Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

    Individuals With LGMD

    Read the personal journeys of those navigating life with LGMD.

    Read stories from individuals living with LGMD

    LGMD Researchers

    Showcasing the groundbreaking work of clinical researchers.

    Articles from clinical researches in the LGMD field

    LGMD Clinic Staff

    Highlighting the exceptional stories of clinicians working in the field of LGMD.

    Stories from LGMD clinicians

    LGMD Organizations

    Highlighting the organizations making a difference in the world of LGMD.

    Articles from other LGMD organizations
    Spotlight Interview Forms

Spotlights

  1. Home
  2. LGMD Researcher - Interviews
  • LGMD RESEARCHER: Pia Elustondo

    Pia Elustondo
  • LGMD RESEARCHER: Katherine Mathews

    Matthews Katherine
  • LGMD RESEARCHER: Antoine Dufour

    Dufour Antoine 1
  • LGMD RESEARCHER: H. Criss Hartzell

    Hartzell Criss
  • LGMD RESEARCHER: Qi Lu

    Lu Qi
  • LGMD RESEARCHER:   Linda Lowes

  • LGMD RESEARCHER:   Melissa Spencer

  • LGMD RESEARCHER:  Mattia Quattrocelli

  • LGMD RESEARCHER: Charles P. Emerson, Jr., Ph.D.

  • LGMD RESEARCHER: Jeffrey S. Chamberlain, Ph.D.

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