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Events

Home/Events/
2022-07-04T00:00:00+00:00
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September 2021

Fri 17
September 17, 2021 - September 20, 2021

2021 International LGMD Conference @ Virtual

Virtual

  The Speak Foundation would like to cordially invite you [...]

O
Thu 30
September 30, 2021

7th Annual LGMD Awareness Day

Worldwide

October 2021

Sat 2
October 2, 2021 @ 6:00 pm - 11:00 pm

11th Annual CureLGMD2i Casino Night

Eden Resort & Suites Lancaster, PA

February 2022

Thu 24
February 24 @ 1:00 pm - 2:00 pm

Lunch & Learn: Gene Therapy 101

Virtual

Gene therapy is the use of genetic material in the [...]

Free
Thu 24
February 24 @ 7:00 pm - 8:00 pm

MDA Advocacy Institute: Unlocking Treatment Development for Rare Neuromuscular Diseases

Virtual

MDA Advocacy Institute: "Unlocking Treatment Development for Rare Neuromuscular Diseases" [...]

Free
Mon 28
February 28

Rare Disease Day 2022

Worldwide

28 FEBRUARY is Rare Disease Day Globally raising awareness and [...]

March 2022

Tue 1
March 1

International Wheelchair Day 2022

Worldwide

First launched in 2008, International Wheelchair Day is celebrated every March [...]

Wed 9
March 9 @ 11:00 am - 12:00 pm

RegenMedEd Webinar: The Critical Role of Patients in Advancing Gene Therapy Treatments for Rare Diseases

Virtual

Join the FDA’s Center for Biologics Evaluation and Research (CBER) [...]

Free

April 2022

Wed 6
April 6 @ 7:00 pm - 8:00 pm

Advocacy Webinar on Accessing Care in the Home

Virtual

Home-based care is proven to result in better health outcomes [...]

May 2022

Wed 11
May 11 - May 12

Australasia Limb Girdle Muscular Dystrophy Virtual Masterclass

Virtual

Taking place on the 11th and 12th of May 2022, [...]

Free
Fri 20
May 20 @ 12:00 pm - 7:00 pm

LGMD Global Advocacy Summit

Virtual

You are invited to the 2022 LGMD Global Advocacy Summit! [...]

Free

June 2022

Sat 4
June 4 @ 11:00 am - 4:00 pm

MDA Engage Webinar: Limb-girdle muscular dystrophy (LGMD) Symposium

Virtual

This educational event empower individuals and families with knowledge and [...]

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