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  • Awareness Day
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    LGMD Awareness Day Toolkit

    Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. Our Awareness Day Toolkit is designed to empower and engage our community in advocacy like never before.

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    About LGMD Awareness Day

    LGMD Awareness Day is an annual effort to draw attention to this rare disease.

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    Join us as an “Ambassador” for Limb-Girdle Muscular Dystrophy Awareness Day.

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    Knowledge Base

    Explore our Knowledge Base for comprehensive information on Limb-Girdle Muscular Dystrophy (LGMD).

    Genetic Testing

    Discover a comprehensive list of global resources for LGMD genetic testing.

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    Learn key facts and familiarize yourself with crucial terminology about LGMD.

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    Spotlights

    Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

    Individuals With LGMD

    Read the personal journeys of those navigating life with LGMD.

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    LGMD Researchers

    Showcasing the groundbreaking work of clinical researchers.

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    Highlighting the exceptional stories of clinicians working in the field of LGMD.

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    Highlighting the organizations making a difference in the world of LGMD.

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Events

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September 2024

Sat 28
September 28, 2024 @ 7:30 pm - 8:30 pm

Connecting for a Cure – Virtual Event 2024

September 28, 2024 @ 7:30PM — 8:30PM Eastern Time (US [...]

Sun 29
Concert For A Cure 2024
September 29, 2024 @ 5:30 pm - 10:00 pm

Concert for a Cure – Featuring Savanna & Ireland Woods

Conway Muse 18444 Spruce St., Conway, WA, United States

Concert for a Cure – A Benefit for the CureLGMD2i [...]

$30.00
Mon 30
September 30, 2024

10th Annual LGMD Awareness Day

Worldwide

Mon 30
September 30, 2024 @ 4:00 pm - 5:00 pm

MDA Webinar: Live Q&A for LGMD Awareness Day

Virtual

MDA Webinar: Live Q&A for LGMD Awareness Day In recognition [...]

January 2025

Tue 21
Air Travel 2025 01
January 21 @ 3:00 pm - 4:30 pm

MDA Webinar: Air Travel Policies and Procedures

Virtual

This MDA webinar will discuss airline policies, review the airline [...]

Tue 28
Care And Planning 2025
January 28 @ 3:30 pm - 5:00 pm

MDA Webinar: Care and Planning Resources for Adults with Neuromuscular Disease

Virtual

This MDA webinar will review common work accommodations, explain how [...]

Wed 29
January 29 @ 11:30 am - 12:30 pm

Limb Girdle Muscular Dystrophy Virtual Information Seminar

Virtual

Join Muscular Dystrophy UK for their LGMD webinar on 29 [...]

March 2025

Sun 16
March 16 - March 19

2025 MDA Clinical & Scientific Conference

Hilton Anatole in Dallas, TX 2201 N Stemmons Fwy, Dallas, TX, United States

April 2025

Thu 24
Lgmd Masterclass 2025 0
April 24 - April 25

Limb-Girdle Muscular Dystrophy (LGMD) Masterclass

Courtyard Hotel Montreal, Canada

TREAT-NMD has organized a Limb-Girdle Muscular Dystrophy (LGMD) Masterclass, scheduled [...]

Wed 30
Undiagnosed Day On April 29
April 30 @ 2:30 pm - 3:30 pm

Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

Virtual

June 2025

Thu 5
June 5 @ 9:00 am - 12:00 pm

Mouthpiece Ventilation in Neuromuscular Conditions

Virtual

Join us on an upskilling webinar on the use mouthpiece [...]

Fri 20
Lgmd2i Conference 2025
June 20 - June 21

2025 Dystroglycanopathy Patient & Family Conference

Graduate Hotel 210 S Dubuque St, Iowa City, IA

Lgmd2i Conference 2025 SAVE THE DATE!! The Dystroglycanopathy [...]

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